Contact Us

KCNT1 Epilepsy Foundation
32531 N Scottsdale Rd, Suite 105-530;
Scottsdale, AZ 85266
kcnt1epilepsy.org

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Registry Contact

Amanda Abuhl
kcnt1_registry@Kcnt1epilepsy.org
833-217-7728

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Institutional Review Board (IRB)

North Star Review Board
learningirb.org
info@northstarreviewboard.org

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Social Media

KCNT1 Epilepsy Foundation | Facebook
KCNT1 Epilepsy Foundation (kcnt1foundation) | Instagram
KCNT1 Epilepsy Foundation | LinkedIn
KCNT1 Epilepsy Foundation | Subscribe

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An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.

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Visit the National Organization for Rare Disorders home page at rarediseases.org.